Dulce
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Dulce was diagnosed with multiple sclerosis at 39 after experiencing several years of pain, muscle spasms, and numbness in her fingers and the left side of her body. Dulce was offered a clinical trial and decided not to participate because her multiple sclerosis was stable, and she felt that she had “got [her] body pretty figured out overall" and didn't want to make any changes. She would be open to trial in the future if she has breakthrough lesions on the treatment she is currently on, as she “highly respect(s) everyone who was in the trial for this (medication currently on).” Dulce has participated in a vaccine trial in the past as well as other research studies: “you don't get innovation without participants.”
Dulce didn’t want to ‘change a thing’ to join a trial, because everything was going well.
Dulce didn’t want to ‘change a thing’ to join a trial, because everything was going well.
So you mentioned when we talked before that you were offered a clinical trial and decided not to participate. Wondering if there's anything you'd like to say about that decision and sort of how that came to be.
Absolutely. So at this time, and maybe I should have been more open, but I just didn't want to be. At this time, with the exception of whatever happening to me acutely, I'm clinically stable, no evidence of disease activity, got my body pretty figured out overall. I don't want to change a thing. Now, if I can do- ok, worst-case scenario: I have new evidence of disease activity. They probably will not want to change this method at this time. Well, let's see. And they feel about another year. Let's do it.