Clinical Trials

JanLynn

Outline: JanLynn was diagnosed with cancer and Lynch Syndrome in her 40s. She was given the opportunity to participate in a trial but decided against it.  
Background: JanLynn, age 47, is a White woman and mother who lives in a Midwestern suburb with her husband.

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JanLynn was diagnosed with invasive endometrial cancer in her 40s after experiencing atypical vaginal bleeding. Labs later revealed she had Lynch Syndrome. Learn more about JanLynn’s experiences with cancer risk that runs in families. In the “very first meeting with the surgeon,” JanLynn was offered the opportunity to participate in a clinical trial but “did not consent.” At the time, JanLynn “couldn’t process what was happening” and that coupled with her tendency to be “a very private person” ultimately meant she was “unwilling” get involved. Since that time, she’s “had to learn to be less private” which has been “an ongoing process.” Now, JanLynn hopes her “experiences can provide something for somebody” and has found other ways to help outside of trials. 

 

JanLynn could not process the idea of a clinical trial during her first meeting with a surgeon.

JanLynn could not process the idea of a clinical trial during her first meeting with a surgeon.

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Were you asked to be involved in any clinical trials?

I was asked. So, you’re asked, not you. But I was asked in the very first meeting with the surgeon. And I did not consent because I couldn't process what was happening to me in the first place. I was unwilling.

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