Kim

Outline: Kim was diagnosed with MS when he was 25 after losing the sense of temperature and pain on the left half of his body. Today, Kim’s MS is stable, and he has completely regained his sense of temperature and pain. Kim has participated in two studies to date, which have given him early access to new treatment.
Background: Kim, age 28, is a graduating medical student who enjoys the outdoors. He is actively involved in many physical activities such as hiking, rock climbing, basketball, running, and ultimate frisbee. Kim identifies as a heterosexual White man.

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Kim was diagnosed with MS when he was 25 after losing his sense of temperature and pain on the left half of his body. He attributed the sensation to stress and an awkward sleeping position. After about a week with continued symptoms, he reached out to a friend’s father who was a neurologist, who suggested he go to the emergency room. Results from brain, cervical spine, thoracic spine MRIs, and a lumbar puncture pointed strongly to a diagnosis of MS. A second opinion from one of the foremost MS specialists confirmed Kim’s diagnosis. Kim is a participant in an observational study that that uses new MRI technology to detect MS through imaging. By taking ultra-fine images of his brain, the research team also aims to study the possibility of early markers for prognosis. Kim is also involved in a second research study that involves cognitive testing. Kim became involved in these studies through his medical institution and considers them to be low impact for his life. Throughout the imaging study, Kim has had access to his imaging and had conversations with the neurologist to go over the imaging results in detail with special emphasis on the things that might be remarkable or interesting. Kim has appreciated the opportunity to have “an advantage against this disease” and maybe find something that “could really help…”

 

Kim joined trials to get a “inside track” on new treatment.

Kim joined trials to get a “inside track” on new treatment.

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And so, I was curious, is there something looming that the general public doesn't know about yet that's kind of still behind the veil of the physicians, the MS specialists, that I could get the inside track on and could give me an advantage against this disease? And again, at the time, the one that had just been approved was formerly that. It was this kind of like hidden gem that was now widely available. So, I felt like I was getting that inside track even without being in a clinical trial, but that was my motivation. Is there something else that I wouldn't find out about from Googling that might be an incredible drug and could really help me?