Makenzie
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Makenzie was diagnosed with MS when she was 13 years old, after she started experiencing double vision. During her childhood, they “used a lot” of her MRIs for research but Makenzie was never in any trials. She “was offered” the opportunity to participate in trials “for a few of the newer pills” but she “didn’t feel comfortable.” Makenzie had concerns about trying something new and having her MS progress, so decided against it. She has “a lot of lesions” on her brain and it made her “nervous” to try a new drug she wasn’t sure “would work.” Makenzie finds other ways to participate in research, by sharing her story and experiences, because “you can’t have pediatric research without patients.”
Makenzie didn’t want to join a trial because “there was too much unknown.”
Makenzie didn’t want to join a trial because “there was too much unknown.”
So I guess I just didn't want to try a med and then have it progress so bad. I feel like if I was off a med and tried a new one that I didn't know would work, it made me nervous. And I have a lot of lesions on my brain, like over 90. And I just, I didn't want that to keep going. So I've had those since I was diagnosed, but, I just didn't want it to progress. I-, there was too much unknown, I guess, for me. I'm just very nervous. I'm a nervous person. So I'm just, yeah, I didn't want to do it, so.