CREDITS
The Study Team: A team of researchers from the University of Wisconsin-Madison (UW-Madison) Department of Family Medicine and Community Health including Rachel Grob, Jane Evered, Kayla Kubehl, Emily Warne, Yara AL-Rayyan and Kelly Novak, and collaborators Stacy Van Gorp and Malena Rousseau at See What I Mean.
Acknowledgements: We wish to acknowledge the 35 people who told their stories for this project, as well as many individuals and groups who supported the project including Cindy George, Lauren Katz, Chandler Swope, and CF Community Voice at the Cystic Fibrosis Foundation; and Team Trust, an advisory board of people with CF, clinicians, and organizational leaders.
Funding: This work was supported by the Cystic Fibrosis Foundation (CFF) Partnership for Sustaining Daily Care project.
Citation: Grob R., Evered J.A., Van Gorp S., Kubehl K., Warne E. Cystic Fibrosis Pilot. Health Experiences Research Network. http://www.healthexperiencesusa.org. Published 2026.