Joseph

Gender: Male
Outline: He has a formal diagnosis of Gulf War Illness, but has received 0% service connection related to it, rather his service connection is for a TBI. He experiences many of the classic Gulf War Illness symptoms, including headaches, bowel issues, and rashes. He has difficulty managing his illness and blames the VA for lack of treatment avenues.
Background: Joseph was a Marine during the Gulf War. He spent a great deal of time in Central America before 1990-1991, and later joined the Army National Guard during OIF/OEF. After returning from the Gulf War, Joseph's wife noticed a fundamental change in his personality and subsequently filed for divorce. He has three kids, including a son in the Army. A resident of the Pacific Northwest, he enjoys camping, reading, and listening to audio books.
Birthday: March 1965

Racial or Ethnic Identification: Caucasian

Branch of Military: Marine Corps

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Joseph, a Marine during his Gulf War deployment, started to experience severe reactions to anthrax vaccinations and unidentified medications, leading to pus formation in armpits, swollen lymph nodes, and debilitating sickness while still deployed. As years passed, these initial symptoms evolved into chronic headaches, joint pain, and fatigue, persisting and compounding with time. His diagnostic journey was fraught with challenges, navigating a medical system that often seemed dismissive or ill-informed about Gulf War Illness. Despite these obstacles, he eventually received a diagnosis of Gulf War Illness, a moment that, while validating, also underscored the systemic inadequacies in recognizing and treating the condition.

Joseph vividly describes his Gulf War experience as a Marine, highlighting the unforeseen health ramifications of his deployment. He recounts, "After they gave us the pills for anthrax, I had pus coming out of my armpits... We were all sick. All our lymph nodes and everything was puffed up," capturing the immediate adverse effects of the preventive medications administered without informed consent. His deployment to the Persian Gulf brought continuous exposure to unknown pills, anthrax vaccinations, and environmental hazards like oil fire soot, contributing to long-lasting health issues such as headaches, joint pain, and chronic fatigue, which he still battles today. Furthermore, he discusses his extensive military history, including deployments to Central America before the Gulf War, emphasizing a contrast in health outcomes pre-and post-Gulf deployment. He has a deep frustration with the lack of acknowledgment and adequate care for Gulf War Illness, reflecting a broader sentiment among Veterans for recognition and support for their service-related health conditions.

Joseph’s journey with the VA and non-VA care has been fraught with frustration, as captured in his own words: "You're not trying to fix the problem; you're trying to mask it." Despite his diagnosis of Gulf War Illness, the Veteran's experiences with treatments have often felt dismissive, focusing on symptom management rather than addressing underlying causes. His self-management strategies have included seeking out mental health support, which he finds beneficial, and participating in online communities for Gulf War Veterans. These platforms offer a space for shared experiences and support, highlighting the importance of acknowledgment and education about Gulf War Illness by healthcare providers. His narrative underscores the ongoing struggle for comprehensive care and recognition of Gulf War-related health issues within the VA system.

Joseph is divorced and has three children. His engagement with hobbies and self-management strategies, such as "I'll go camping. Read... listen to books," reveals attempts to find solace and manage symptoms independently. These reflections underscore the complexity of navigating life after military service, balancing health challenges with personal and familial responsibilities, and seeking solace in hobbies as a form of self-care amidst ongoing struggles with health and the VA system.

 

Joseph wants to know why no one is helping the Gulf War Veterans.

Joseph wants to know why no one is helping the Gulf War Veterans.

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It’s not an illusion. It’s not a figment of my imagination or all the other Veterans, complaining of the same symptoms, the same things. It’s not going to go away. It’s going to get worse. It’s getting worse. How are—come up with a plan to help us get through it, would be my statement to you. You know you have your core group, something—don’t know what, don’t care what it is—something was done. How are you going to help us, get us through? I know it’s not going to happen tomorrow. But show us improvement. Because right now, VA—I don’t mean you guys—the VA has done nothing. They barely acknowledged.

 

Joseph questions why the VA would bother diagnosing him with Gulf War Illness if they’re not going to treat it.

Joseph questions why the VA would bother diagnosing him with Gulf War Illness if they’re not going to treat it.

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Is there a reason I’m getting these headaches? What’s the symptoms? Well, we don’t know. Well, I’ll tell you, but you don’t want to listen to me. You know, do we have another Agent Orange here, thing going on? What the hell? But they just don’t want to acknowledge something is screwed up? Someone screwed up. You know? If they didn’t diagnose me with that, why did they even diagnose me with it, is my question. Now that they don’t want—they diagnosed me with it, now they don’t want to treat it. What’s going on? There’s a hell of a jump there. Why even say it?

 

Joseph wants caregivers to know that the trauma and health processing that a Veteran is going through isn’t their fault.

Joseph wants caregivers to know that the trauma and health processing that a Veteran is going through isn’t their fault.

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You know, we’ve been told to keep going. Keep trying. That no matter how hard they knock you down, get back up. That’s about it. You know, but we’ve been told that and it’s been drilled into our heads so much that that’s a common—it’s going to happen. You know, we are getting older, so yeah. If they ask, come in and tell them. If the VA asks. That’s about it. It's not him or hers fault. You know? It’s not him or hers fault.

 

The pills and shots Joseph received for several months caused reactions, frustration, and confusion.

The pills and shots Joseph received for several months caused reactions, frustration, and confusion.

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After they gave us the pills for anthrax, I had pus coming out of my armpits. Yeah, something—yeah. And that was from the pills. They didn’t tell us what it was. They just lined us up. Here, take these pills. Didn’t give us a choice. It was ordered. You take them pills. Didn’t see no officers or anybody else do it, higher up the chains, but I don’t appreciate being a guinea pig. That’s the first time I noticed something wrong—was seriously wrong. We all had fevers. We were all sick. All our lymph nodes and everything was puffed up. Yet they kept giving us the pills. That’s the first time I noticed something was wrong. By then, it was already—started getting headaches. For some reason they gave us blood thickener. I’m thinking—Okay, we hit the beaches, we’re not going to bleed so bad. That didn’t work out too well. Then they had to turn around and give us blood thinner. Well, go figure. Yeah. Idiots. Then I sat there for months on end outside in the Persian Gulf while the buildup was going on. And all this time, they were giving us pills, shots, you know, because supposedly he had anthrax and all that other chemical warfare stuff. And yeah, the alarms went off. We were told—Ah, it’s bad batteries. Just shut them off, take the batteries out. Okay. 

 

Joseph recalled, “Our skin was just covered in that soot. And we were breathing it.”

Joseph recalled, “Our skin was just covered in that soot. And we were breathing it.”

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Yeah, we were on land and the Patriots fired and we had scuds coming in. Alarms would go off. We were told to ignore it. Okay, maybe two or three hours after the alarm went off, we were told to get in the MOPP suit. Then we’d wear the MOPP suit for three days. Okay. What’s what’s—you know, you’re about two hours too late here. What’s going on? Oh, just ignore it. I drove down the Highway of Death in a MOPP suit. You ever hear of the Highway of Death? Yeah, I was there. You know, be sitting out in the middle of the Kuwaiti desert, and the alarms would go off. Fire—oil fires? It would be 12 o’clock in the afternoon and you could swear it was twelve-thirty, one-thirty in the morning. Pitch black. All the time. Days on end. Our skin was just covered in that soot. And we were breathing it. 

 

Joseph and his fellow service members showed symptoms immediately after taking pills.

Joseph and his fellow service members showed symptoms immediately after taking pills.

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After they gave us the pills for anthrax, I had pus coming out of my armpits. Yeah, something—yeah. And that was from the pills. They didn’t tell us what it was. They just lined us up. Here, take these pills. Didn’t give us a choice. It was ordered. You take them pills. Didn’t see no officers or anybody else do it, higher up the chains, but… I don’t appreciate being a guinea pig. That’s the first time I noticed something wrong—was seriously wrong. We all had fevers. We were all sick. All our lymph nodes and everything was puffed up. Yet they kept giving us the pills. That’s the first time I noticed something was wrong. 

 

Joseph ties the illness to the pills and shots service members had to take in the Gulf.

Joseph ties the illness to the pills and shots service members had to take in the Gulf.

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Participant: Never had no problems. I contribute a lot of that to them pills that they made us take pills and shots. And they wouldn’t tell us what they were for. They just said line up and take them. 

Interviewer: Did you have any type of immunizations or pills prior to your other deployments? 

Participant: No. Not pills like that. Not in that—if I remember right, it was set in three increments that we had to take the pills for anthrax. And they told us. They did tell us that. It’s anthrax treatment. Well, okay. Does this mean we can walk in an anthrax environment? No, it will just mean you can work 15 minutes more. Really? What’s the MOPP suit for, then? But before the—like my deployments to Gitmo, Guantanamo Bay, Cuba. No. I had the regular immunization shots. You know, tetanus and whatnot. But now you look in my medical book and I bet you it’s not in there.

 

Joseph is tired of being given pills that don’t solve his underlying problems.

Joseph is tired of being given pills that don’t solve his underlying problems.

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Joseph: I signed up for vocational rehab. Body aches, everything going on. Still going to the VA. They were just giving me pills. More pills. You know, kind of a—Well, here. Don’t know what this is, but take it. See what happens.

Interviewer: And what happened?

Joseph: Well, I got tired of taking pills, is what I got tired of. You’re not treating—you’re not trying to fix the problem. You’re trying to—to me, pills mask it. They don’t treat it. They mask the pain. Yeah, you take it away for a few hours, but it’s still there. Why is it still there? Why does my back still hurt? Why does—my shoulder’s burning right now? Why are my joints sore? My grip is getting—my grip is not as strong. I can’t squat down and stand up without assistance. I’m only 54. Well, we don’t see nothing wrong with it. Well, why does it hurt? Well, take this pill. I don’t want any more pills. Unless they’ve got a cure pill. I’ll take that.