CREDITS
Funding for this project was supported by the University of Wisconsin School of Medicine and Public Health, the Wisconsin Partnership Program, the University of Wisconsin Medical Foundation, the University of Wisconsin Institute for Clinical and Translational Research funded by a Clinical and Translational Science Award (CTSA) program, through the NIH National Center for Advancing Translational Sciences (NCATS), grant UL1TR000427, the Center for Patient Partnerships, the University of Wisconsin Department of Family Medicine and Community Health, and the Health Innovation Program.
Rachel Grob
Rachel Grob is co-Principal Investigator on this project and qualitative research lead for the United States’ Database of Individual Patient Experience (DIPEx) Initiative. In addition to co-leading the project, she conducted half of the interviews. She is a sociologist who specializes in studying patients’ experiences with health care and using their perspectives to improve health care and health policy.
Nancy Pandhi
Nancy Pandhi is co-Principal Investigator on this project and a founding member of the United States’ Database of Individual Patient Experience (DIPEx) Initiative. In addition to co-leading the project, she served as clinical lead. She is a family physician and mixed-methods researcher who focuses on mental health in both her research and clinical roles.
Meg Wise
Meg Wise is Co-Investigator on this project. She conducted half the interviews and participated actively in multiple aspects of this team endeavor. She is a qualitative researcher who has used patients’ stories to understand illness experiences and improve health service delivery.
Mark Schlesinger
Mark Schlesinger is “coding buddy” on this project, bringing this charming role from the U.K. model to our team-based endeavor. He read all the data and consulted on all of the topic summaries. He teaches health policy at Yale University, and is a founding member of the United States’ Database of Individual Patient Experience (DIPEx) Initiative.
Natalie Wietfeldt
Natalie Wietfeldt is the project Research Specialist. She helped keep the project running smoothly from start to finish.
Advisory Panel Members
Dr. Erika Cottrell is assistant professor and investigator at Oregon Health and Sciences University Department of Family Medicine and founding member of the United States’ Database of Individual Patient Experience (DIPEx) Initiative.
Ms. Liz Obert is Associate Professor of Art at Linfield College, and a practicing artist whose work focuses on images of people living with mental illness.
Dr. David Rakel is a family physician and faculty with the University of Wisconsin Department of Family Medicine and Community Health. He is director and founder of the University of Wisconsin Integrative Medicine program.
Dr. Andrew Moore is a psychiatrist and faculty with the University of Wisconsin Psychiatry Department. He regularly integrates mindfulness into psychotherapy as part of his clinical practice.
Dr. Shanda Wells is a Behavioral Health Psychologist with the University of Wisconsin Medical Foundation and on the Board of the Wisconsin Psychological Association. Her areas of specialization include behavioral problems, trauma, health psychology and behavioral health consultation.
Myra, Colin and Crystal are young adults who both participated in and gave indispensable ongoing advice on the project.
Dr. Andrew Moore is a psychiatrist and faculty with the University of Wisconsin Psychiatry Department. He regularly integrates mindfulness into psychotherapy as part of his clinical practice.
Dr. Shanda Wells is a Behavioral Health Psychologist with the University of Wisconsin Medical Foundation and on the Board of the Wisconsin Psychological Association. Her areas of specialization include behavioral problems, trauma, health psychology and behavioral health consultation.
Myra, Colin and Crystal are young adults who both participated in and gave indispensable ongoing advice on the project.
Acknowledgments
Most special thanks to the 38 young adults who told their stories for this project.
Skillful assistance was provided by Cecie Culp, Lane Hanson, Sarah Heyn, and Zaher Karp.
Advice and comradery in the creation of this module was provided by all members of the United States Database of Individual Patient Experience Initiative, now constituted as the “Health Experience Research Network -USA.” Members are: Dr. Erika Cottrell, Oregon Health and Sciences University; Dr. Kay Dickersin, Johns Hopkins University; Dr. Rachel Grob, University of Wisconsin-Madison; Dr. Mark Helfand, Oregon Health and Sciences University; Dr. Nancy Pandhi, University of Wisconsin-Madison; Dr. Mark Schlesinger, Yale University; Dr. Katherine Smith, Johns Hopkins University.